I didn't blog this past weekend because I was blessed with feeling too well and had other more amusing things to do.
Ever since I got sick two months ago, I've been prodded and poked, tested and scanned till I had information overload. So I checked all the info against research that I did on the Net - for which I also thank God. Today I went to my doctor armed with a sheaf of notes and, by the end of the consultation, we were on the same page. Yes, the first diagnosis of COPD (chronic obstructive pulmonary disease - from smoking) was partially correct but it is not the whole story.
Eleven years ago I had to have major surgery to remove a colostomy that had been put in because of diverticulitis emergency surgery the year before. My doctor at the time refused to allow me to have the surgery unless I had stents placed in the arteries in my heart. He felt that, if I didn't, I could die during surgery (as I had "died" the year before during the emergency surgery - but was resuscitated.) I refused as it the procedure was too new at that time and too many of the stents (small tubes to keep the arteries open) failed and had to eventually be replaced by bypass surgery which is open-heart surgery - major! I knew that my heart was not perfect but I did not think that it was so bad that I needed stents.
I decided to consult one of the best cardiologists in San Francisco whom I knew from my days working in a hospital pharmacy. He told me that I was fine for surgery and that he would make sure I got through it okay but he also told me that I had the beginnings of CHF (congestive heart failure) which would get worse as I aged.
Well, I survived the surgery and was fine until 5 years later when I had a heart attack. Again I was told that I had to have stents in my heart arteries and once again I refused and checked myself out of the hospital. I hadn't been at home for very long before I asked Chas and Andy to take me back to the hospital because it was obvious to me that I was dying and, if stents could give me a few more years, I was willing to take the chance. I was shipped off to Eugene for 4 days, had 3 stents put in and came home with a new lease on life, feeling better than I had in years.
That is until two months ago when I had to go the the ER because I could not breathe and was writhing with abdominal pain. I knew it was not a heart attack but I also knew that I was dying. I figured it was because of smoking and drinking and that I was paying for the sins of my youth. I told the doctor that I was suffering from COPD and fatty liver disease and that's what she diagnosed me with.
Two months later, after reviewing the results of all the tests that I had and checking the info against research that I did on the Net, I realized that I had to face up to a fact that I had been denying for too long. Like my mother and father, I had CHF.
A friend of mine (who is having his own battle with declining health) emailed me over the weekend and I replied that I too was having health problems. By that time I already knew that I had CHF but I was in such denial that I could not bring myself myself to tell him and deleted the words "congestive heart failure" in case I jinxed myself. Instead I just said that I was having problems with my heart and lungs.
But I couldn't fool myself. I knew from all my research that I had CHF. It's not a happy diagnosis. Men my age have a 50% chance of surviving 5 years after diagnosis. My dad died when he was 6 years younger than me - 57. Women last longer and the disease progresses more slowly. My mom lasted till she was 81. She knew that she had CHF in her seventies and told me that she did not want to live past 80. It's a debilitating disease.
Yes, I brought about my sickness partly through the sins of my youth but also inherited the tendency from both parents. On my mother's side it comes from a genetic heart defect that most Afrikaners/Boers have. I wrote about it
here where I said:In 1901 and 1902, the British torched more than 30,000 farms in the South African Republic and the Orange Free State and placed all the Afrikaner women and children in the world's first "concentration camps," where, because of overcrowding and unsanitary conditions, more than 25,000 Afrikaner women and children died.
...
22,000 Afrikaner children died in the concentration camps in the first ten months. Nearly one quarter of all the Boers in existence at the time were killed by the British. As a result the gene pool was so small that many Afrikaners have a genetic heart defect to this day.
When I was a kid, I used to get what the doctor called "heart palpitations" and "bronchial asthma". I now know that those were warning signs of CHF. CHF can be caused by quite a few different things but it is often hereditary and, once you have had a heart attack, the chances of getting it are increased. And taking recreational drugs, boozing and smoking as I did doesn't help either.
One thing that I did learn in my research is that CHF cannot be cured - only some suffering can be alleviated - and death can be delayed for a while by modern medicine. So, I decided to check out alternative herbal medicine. But I didn't put all my eggs in one basket.
I learned that two of the conventional medications are useful for treating CHF: digoxin and lisinopril. Digoxin has been used for centuries in the form of the foxglove plant and lisinopril is a drug of the angiotensin-converting-enzyme (ACE) inhibitors class. (The ACE inhibitors dilate the blood vessels. This allows the blood to flow more freely to and away from the heart which lowers blood pressure.) It was developed from the venom of a poisonous snake of Brazil. Also both digoxin and lisinopril strengthen the muscles of the heart muscles which become flabby as the heart enlarges.
I had some lisinopril left over from when I had the heart attack. I had to stop taking it because it dropped my blood pressure too low - often as low as 80/60 and once as low as 60/40 just as I was about to have stress test which had to be canceled. I decided to take it at bedtime this time round and so far my BP has not dropped too low. I also started taking the herbal remedies hawthorn, astralagus and osha last week. By Saturday I was feeling really well. So something is working.
Also I had a thought about dying that had been bothering me. Death by CHF is a horrible affair. Basically you slowly drown/asphyxiate on the fluid in your lungs because the heart muscles are too weak to pump the lungs clear properly. Then I remembered how morphine had been pumped straight into my lungs when I was in hospital before Christmas. It had the immediate effect of relaxing the lungs so that I could cough the fluid out and breathe easily. And fortunately it does not have the narcotic effects so you are not all drugged up and loopy. That thought comforted me as it will make my death a much more pleasant affair.
Meanwhile I'm going to enjoy what ever time I have left. As I emailed to my friend the other day:
I've decided I am just going to live for today and enjoy life to the fullest but I had to go through some soul searching. Chas and Andy think I should not post my latest revelations on my blog about how I brought about my own sickness through self loathing but I think I will because it may help someone.
Even the whole surrender to our guru thing was because I had no real respect or love for myself. The funny thing is that, ever since I told Chas and Andy my realization of how self destructive I've been and how much I've actually hated myself, I feel like a weight has been lifted off me. I've been a real shit most of my life but have put on an act of being a good person. I could fool others but not myself.
I've known that I've had heart, lung and liver diseases for a couple of years now but I was in denial until I ended up in hospital 2 months ago at death's door. The fact is that I should have died a long time ago - first when I had the colostomy and then the stroke and then a heart attack but somehow I survived and so now I count each day as a gift.
BTW it's not like I am placing all the blame for my illness on genetic factors; squealing that I was dealt a bad hand in this game of cards called life. I know that the sins of my youth have played a big part - especially the self-loathing - but I think I'll save that topic for a post all of its own.
Labels: chronic obstructive pulmonary disease, colostomy, congestive heart failure, health, heart stents, herbs, organ recitals